Epilepsy Life Links is active all year long organizing educational conferences with the main theme of: Take Control of Epilepsy and Bring Epilepsy Out of the Shadows. Our team also walks in most of the regional Epilepsy Walks raising funds for the Epilepsy Foundation and sponsors other events that promote Epilepsy Awareness.
March 26, 2011
The Northeast Regional Epilepsy Group is celebrating Purple Day and supporting the Anita Kaufman Foundation.
Remember to wear purple as a reminder of epilepsy and visit the Anita Kaufman Foundation page. Read all about the delicious purple cupcakes initiative that gets the word out nationwide
about epilepsy and raises funds for the foundation.
http://akfus.org/
March 27, 2011 at 10AM
National Mall in Washington, DC
Come walk with us in Washington, DC!
Join the Northeast Regional Epilepsy Group’s Team
as we go on
the National Epilepsy Walk
If you can't afford the travel costs, click below and read about our Epilepsy Walk Travel Fund
Thousands raising money to fight stigma, raise awareness and find a cure for epilepsy
Where: National Mall in Washington, DC
When: March 27, 2011 at 10AM
Team Captain: Lorna Myers, Ph.D. (lmyers@epilepsygroup.com)
Click here to join
Remember, even if you can't be there with us that day, you can still support us through donations from you or people you know. Help us reach that goal!
Come visit our Northeast Regional Epilepsy Group booth at the Expo Tent
Interested in attending the National Walk for Epilepsy in Washington, D.C. but need assistance in paying for transportation (train ticket, bus ticket, or gas mileage)?
If you are in New Jersey, the Northeast Regional Epilepsy Group has donated funding to the Epilepsy Foundation of New Jersey to help persons with epilepsy travel to and from Washington, DC for the walk on March 27, 2011.
Contact Andrea Racioppi at 800.336.5843 or aracioppi@efnj.com
Now that your travel costs are one less worry, join our team and walk with us.
Experience the strength of thousands walking in DC to bring epilepsy out of the shadows and to the forefront of everyone's mind.
Epilepsy Taking Control - Patient Education Conference
Saturday, April 2, 2011
Hackensack University Medical Center
30 Prospect Avenue
Hackensack, NJ
Continental Breakfast & Registration: 8:30am – 9:00 am
Education Program: 9:00am – Noon
Speakers include:
• Georges Ghacibeh, MD, MS Advances in Epilepsy Treatment
• Arno Fried, MD., FACS Epilepsy Surgery
• Robert Trobliger, Ph.D. Memory treatment in epilepsy
• Holly Shuart (the Epilepsy Foundation of New Jersey) Epilepsy Resources in New Jersey
To register call or write: Lisa Urbani at 800.336.5843 and lurbani@efnj.com
Sunday, May 15, 2011
Seaside Heights NJ.
Join The Family Resource Network and its affiliates as we raise awareness and dollars to support existing programs and expansion projects. This will be a fun filled day for families and friends to walk in support of their loved ones. A casual 5k Walk, entertainment and refreshments will be just a few of the days highlights.
Please join us in our continuing efforts to provide low-cost quality services to New Jersey families living with developmental disabilities and chronic illness.
You can make a difference!
Click here for more information and to sign up
Sunday, May 22, 2011
Dutchess County Fairgrounds
Interested in helping us raise funds for the Epilepsy Foundation? There are a bunch of ways to help. Register to walk with us as our team member, set a goal, and begin raising money in support. Or if you can't be there with us that day, donate or find others to donate to help us reach our goal. Let's keep the momentum going!
The Northeast Regional Epilepsy Group will be walking in the Second Annual Stroll for Epilepsy-Hudson Valley on May 22, 2011
Click here for more information
Sunday, October 9, 2011.
Edison Park, NJ
Let's raise epilepsy awareness all year long
"Illuminations"
How do you shed light on your epilepsy?
If you express your feelings
through the arts, we would like to invite you
to share them with us.
Please send us your artwork. The possibilities are endless!
• Share your poem or story.
• Show us your photographs or artwork.
• Submit a drawing or video and your creative art work will be posted on our
websites or Facebook pages.
Let’s bring epilepsy out of the darkness together.
Accepting submissions on an ongoing basis.
Your submissions will be placed either on our Facebook pages
or the Northeast Regional Epilepsy Group or Epilepsy Life Links websites.
Send your submissions via email to Ann Marie Bezuyen: abezuyen@epilepsygroup.com
Purple Day - CUPCAKES WITH BUDDY
Supporting Epilepsy Awareness
The Anita Kaufman Foundation is pleased to anounce Cupcakes with Buddy: Supporting Epilepsy Awareness. Buddy Valastro, the star of “Cake Boss” on TLC, will host the foundation’s annual fundraising event. 13 bakeries from around the tri-state area will be featured. Each bakery will present its best purple cupcake for all to taste.
The sweetest part of all is that all proceeds will go toward the educational programs, materials, and seizure first aid trainings organized by the Anita Kaufmann Foundation and offered free-of-charge to the public.
The Northeast Regional Epilepsy Group is proud to be a PURPLE SUPPORTER of this fantastic event.
March 13, 2011
3-5 PM
W HOTEL, HOBOKEN, NEW JERSEY
Epilepsy Taking Control - Patient Education Conference
Saturday, March 12th - 8:30AM - NOON
Hilton Garden Inn
270 Korean War Veterans Memorial Highway
NANUET, NY 10954
AGENDA
8:30am-9:00am
ENGLISH: TOPIC - Registration & Breakfast
SPANISH: TOPIC - Registration & Breakfast
9:00am-9:05am
ENGLISH: TOPIC - Program Introduction
PRESENTER: Dr. Marcelo Lancman
SPANISH: TOPIC - Program Introduction
PRESENTER: Dr. Lorna Myers
9:00 am-9:40am
ENGLISH: TOPIC - Advances in the Diagnosis and Treatment of Epilepsy
PRESENTER: Dr. Olga Laban
SPANISH: TOPIC - Cómo Obtener Beneficios de Seguro Social
PRESENTER: Adrienne Arkontaky, Esq.
9:45am-10:25am
ENGLISH: TOPIC - Obtaining Social Security Benefits
PRESENTER: Adrienne Arkontaky, Esq
SPANISH: TOPIC - Tratamiento de Problemas de Memoria y Depresión en Epilepsia
PRESENTER: Dr. Lorna Myers
10:25am-10:40am
Break
10:40am-11:20am
ENGLISH: TOPIC - Treatment for Memory and Mood Problems in Epilepsy
PRESENTER: Dr. Lorna Myers
SPANISH: TOPIC - Avances en el Diagnostico y Tratamiento de Epilepsia
PRESENTER: Dr. Marcelo Lancman
11:20am-Noon
ENGLISH: TOPIC - Services Close to Home
PRESENTER: Caroline Kasprzyk, Manager of TBI Services Epilepsy Society of Southern New York
SPANISH: TOPIC - Servicios cerca de su casa
PRESENTER: Caroline Kasprzyk, Manager of TBI Services Epilepsy Society of Southern New York
Register English Program:
Ann Marie Bezuyen – 845-695-6885 or abezuyen@epilepsygroup.com
Register Spanish Program:
Amanda Franklin – 845-695-6885 or amanda.franklin.e@gmail.com
When: January 29 from 8:30-12.
Where: Jersey City medical Center on 355 Grand Street, Jersey city
In English and Spanish
To register call Lucy Gonzalez at 201-343-6676
Agenda:
9:05 to 9:45 Advances in Diagnosis and treatment of Epilepsy-Evan Fertig, MD
9:45-10:25: Treatment for Problems associated to Epilepsy: memory, attention, depression and anxiety
10:25-10:40 Break
10:40-11:20 Obtaining Social Security Benefits. Bernard Shapiro, Esq.
12-12:05 Closing Remarks
In Spanish:
9:05-9:45 Avances en el Diagnostico y Tratameinto de la epilepsia-Enrique Feoli, MD
9:45-10:20 Vivir con la Epilepsia-Fundacion de Epilepsia de New Jersey
10:25-10:40 Descanso
10:40-11:20 Obtencion de beneficios de Seguro Social-Bernard Shapiro, Esq.
11:20-12 Tratamiento para Problemas asociados a la Epilepsia: memoria, atencion, depresion, ansiedad.
American Epilepsy Society 2010 Annual Meeting held in San Antonio
The Epilepsy Lifelinks Team of the Northeast Regional Epilepsy Group will have a booth at the American Epilepsy Society 2010 Annual Meeting held in San Antonio, Texas on December 3-7.
Attendees are invited to come by to hear about and take written information on the many social services that Epilepsy Lifelinks is providing in New York, New Jersey and Connecticut to patients of all ages who carry a diagnosis of epilepsy.
Thursday, November 18, 2010 from 11AM to 4PM
Epileptologist, Dr. Olga Grant Laban and Ann Marie Bezuyen, Executive Director of Epilepsy Life Links will be at White Plains Hospital Center lobby with tables providing information about epilepsy and treatment options.
No registration required.
Address: 41 East Post Road, White Plains, NY
Saturday, November 6, 2010
Wallace Auditorium, Overlook Hospital in Summit NJ
8:45 to 9:00
Registration and Continental Breakfast
9:00 to 9:05
Welcome
Jeffrey Politsky, MD
9:05 to 9:35
Epilepsy 101
Enrique Feoli, MD
9:35 to 10:05
Pediatric Epilepsy
Danielle McBrian, MD
10:05 to 10:35
Post-traumatic Epilepsy
Jeffrey Politsky, MD
10:35 to 10:45
BREAK
10:45 to 11:10
Cognitive Remediation:
Strategies for Memory Problems
Robert Trobliger, PhD
11:10 to 11:35
Epilepsy and Lifestyle Issues:
Driving and Other restrictions
Jeffrey Politsky, MD
11:35 to 11:45
Epilepsy Services in NJ
Andrea Racioppi, EFNJ
11:45 to 12:00
Q&A Panel
All
Register today for this FREE Epilepsy Advocate event.
Saturday, October 30, 2010
Registration: 9:30 AM
Program: 10:00 AM
Sheraton Meadowlands Hotel and Conference Center
2 Meadowlands Plaza
East Rutherford, NJ 07073
Speakers: Dr. Georges Ghacibeth, Northeast Regional Epilepsy Group Epileptologist and Epilepsy Advocate, Alyssa K
Call 1-866-865-7305 or go to www.epilepsyadvocate.com to register today
Our Epilepsy Lifelinks/Northeast Regional Epilepsy Group staff will be welcoming questions at our booth at this conference:
Tuesday, October 26, 2010
Renaissance Woodbridge Hotel- New Jersey
Keynote Speaker
John F. Crowley, J.D., M.B.A
Chairman and CEO
of Amicus Therapeutics
Father of the family that inspired the movie "Extraordinary Measures"
For more information please visit the website at www.nationalcaregiversconference.org or call 1(800)372-6510
The Northeast Regional Epilepsy Group-Life Links will have a booth at the Autism Speaks Walk where we will be answering questions about epilepsy and handing out printed information.
One of our medical doctors and one of our epilepsy advocates will be on hand.
Join us there!
Saturday, October 23, 2010 • Rockland County Community College, Suffern, NY
Registration Opens: 9:30am; Walk Starts: 11:00am
To Register or form a team:
https://www.kintera.org/faf/r/default.asp?ievent=347296&lis=1&kntae347296=8AA78D0C9D0D49D58BC5D6EDD9914656
Saturday, October 16, 2010
9am - Noon
Stamford Marriott Hotel
2 Stamford Forum
Stamford, CT 06901
ENGLISH
• Epilepsy & Seizures:
Causes, Classifications & Diagnosis
Marcelo Lancman, MD
Director of the Northeast Regional Epilepsy Group
• Treatment Strategies For
The Management of Epilepsy
Evan Fertig, MD
Epileptologist, Northeast Regional Epilepsy Group
• Cognitive Remediation:
Strategies for Memory Problems
Robert W. Trobliger, Ph. D.
Psychologist, Northeast Regional Epilepsy Group
• An Overview of Services:
Epilepsy Foundation of Connecticut
Linda Wallace - Executive Director
Allison Gamber - Program Coordinator
SPANISH
• Avances en el diagnóstico y tratamiento
de la epilepsia
Marcelo Lancman, MD
Director of the Northeast Regional Epilepsy Group
• Tratamientos para problemas asociados a la epilepsia: memoria, atención, depresión, ansiedad
Gonzalo Vazquez-Casals, Ph. D.
Neuropsychologist, Northeast Regional
Epilepsy Group
• ¿Cómo la escuela puede ayudar a los estudiantes y a los padres sobre la condición de la epilepsia?
Evelyn Velis
NY Public School Teacher
• Obtención de beneficios del Seguro Social
Bernard L. Shapiro, Esq.
Sandra Canales Legal Assistant
Siegel & Shapiro, P.C.
NEREG has gone GREEN:
All presentations from the conference are available for you to download listed by presenter name. Just click and print.
Dr. Evan Fertig - Treatment strategies in epilepsy
Dr. Marcelo Lancman - Epilepsy (English)
Dr. Robert Trobliger - Cognitive remediation and epilepsy
Dr. Gonzalo Vazquez Tratamientos Psicológicos en la Epilepsia
Dr. Marcelo Lancman Diagnosis and treatment of epilepsy (Spanish)
Dr. Marcelo Lancman Epilepsy Surgery (Spanish)
Evelyn Velis epilepsy in school (Spanish)
The (FRN) is dedicated to offering individuals and their families with continuing needs the greatest opportunities, resources and services to support a full and happy life.
Introduced in September 2004, The Family Resource Network is a comprehensive family-focused human service organization. It was created as a result of the Epilepsy Foundation of New Jersey's tremendous growth in serving a broad spectrum of disabilities. Core services provided by FRN are after-school care, employment, information and referral, in home respite, legislative advocacy, and recreation/socialization.
The Family Resource Network is comprised of four affiliate organizations including: Autism Family Services of New Jersey, Caregivers of New Jersey, the Epilepsy Foundation of New Jersey, and the Family Support Center of New Jersey.
By supporting Walk for a Brighter Tomorrow, you will enable The Family Resource Network to continue to provide and expand its menu of services and make an impact on the lives of many.
The Walk for a Brighter Tomorrow is a fun filled 5K Family Walk. Walkers will have an opportunity to take photos with celebrity mascots, ask questions at interactive booths and receive free admission to the Family Fun Day. Most importantly, it is an opportunity to spend time with family and friends to raise much needed funds for a worthwhile cause.
When: October 10, 2010
The Walk will take place at Roosevelt Park in Edison, New Jersey. Registration will take place from 11AM-12PM, and the Walk will begin promptly at 12PM. Walk for a Brighter Tomorrow will take place Rain or Shine!
Immediately following the event, all registered walkers will be invited to participate in the Family Fun Day free of charge. Activities will include, a light lunch, refreshments, face painting, moonbounce, sports clinics and much more!
Second Annual Conference of Northeast Regional Epilepsy Group. You will hear about diagnosing and treating Adult and Pediatric Epilepsy, special concerns in women with epilepsy, depression and memory in epilepsy, Diet and Epilepsy and safety and the law in epilepsy.
Saturday, October 2, 2010
FREE EVENT!
Supported in part by an educational grant from Cyberonics, Inc, Digitrace and UCB.
Time:
9:00AM – 10:00AM Registration & Breakfast
10:00AM – 3:00PM Program
12:00PM - Lunch
Location:
Sheraton Crossroads
1 International Boulevard #100
Mahwah, NJ 07495
AGENDA
9:00AM – 9:45AM - Registration & Breakfast
• Program Introduction
Marcelo Lancman, MD
Director, Northeast Regional Epilepsy Group
10:00AM – 10:50AM
• “Pediatric Epilepsy”
Danielle K. McBrian, MD
NEREG Pediatric Neurologist/Epileptologist
• “Is Epilepsy Inherited? A Guide for Patients and their Families”
Evan Fertig, MD
NEREG Epileptologist
• “Women & Epilepsy”
Olga Laban-Grant, MD
Epileptologist, Associate Director NEREG
• "Depression & Stress in Epilepsy: Management Strategies”
Lorna Myers, PhD
NEREG Director of Clinical Neuropsychology
11:00AM – 11: 15AM - Morning Break
11:15AM – NOON
• “The Role of Diet in the Management of Epilepsy”
Dana Casendino, RD
NEREG Nutritionist
• “Medications for Epilepsy: Today & Tomorrow”
Jeffrey M. Politsky, MD, MSc, FRCP(C)
Co-Director, Atlantic Neurosciences Institute,
NEREG Epilepsy Program Director of Research
• “Cognitive Remediation: Strategies for Memory Problems”
Robert W. Trobliger, PhD
NEREG Neuropsychologist
• “Strategies for living safely with epilepsy: A personal and professional perspective"
Lindsey Veety, PT, DPT, ATP
The Center for Discovery Director of Assistive Technology
12:00PM – 12:50PM - Lunch With The Presenters
1:00PM – 1:50PM
• “Sleep & Epilepsy”
Georges Ghacibeh, MD, MS
NEREG Epileptologist, Director of Behavioral Health
• “Epilepsy 101”
Enrique Feoli, MD
NEREG Epileptologist
• “The Neurogenetic Basis of Autism with Epilepsy”
Joseph J. Higgins, MD, FAAN
Professor, Dept. Pediatrics, Div. Pediatric Neurology, Weill Cornell Medical College
• “Surgery & Devices for Intractable Epilepsy”
Arno H. Fried, MD, FACS
Neurosurgeon, Chairman, Dept. of Neurosurgery at Hackensack
University Medical Center, Chief of Pediatric Neurosurgery at St. Peter’s University Hospital
2:00PM – 2:15PM - Afternoon Break
2:15PM – 3:00PM
• “Lifetime Planning for People with Disabilities”
Adrienne J. Arkontaky, Esq
Littman Krooks LLP
• "It looks like a seizure, but is it?"
Stephen J. Thompson, MD
Chief, Section of Pediatric Neurology
Director, Pediatric Neuro-Oncology Program Hackensack University Medical Center
• “Experimental and Alternative Treatments for Epilepsy”
Georges Ghacibeh, MD, MS
Epileptologist, NEREG Director of Behavioral Health
Shannon E. Brophy, RN, MSN, APN-BC
• “Teens, Young Adults & “Epilepsy: Transition Planning”
Harriet Schleifer, Esq.
Littman Krooks LLP
General Directions to the Hotel:
Complimentary Covered Parking Facilities
From North
Take New York State Thruway (I-87) South to Route 17 South (exit 15). Follow for 1 mile and take the Mountainside Avenue Crossroads Boulevard Exit. Follow signs to hotel.
From West
Take I-80 East to Route 17 North and follow Route 17 North for approximately 14 miles. Exit at Mountainside Ave/Crossroads Boulevard. Or take Route 202 North to Route 17 North to Mountainside Ave/Crossroads Boulevard.
From Northeast
Take the New York State Thruway (Route 87 North/Route 287 West) to Exit 15 (Route 287 South) to Exit 66 (Route 17 South/Mahwah). Once on Route 17 South, take the exit on the right at Mountainside Avenue/Crossroads Boulevard.
From South
Take Garden State Parkway North to Exit 163 or take I-80 to Route 17 North. Follow Route 17 North approximately 14 miles. Exit at Mountainside Avenue/Crossroads Boulevard.
From Newark International Airport
Follow the signs out of the airport for the New Jersey Turnpike/ I-95. Take the turnpike to Exit 16W. Take Route 3 West to Route 17 North and continue for approximately 18 miles. Exit at Mountainside Avenue/Crossroads Boulevard.
Transportation Options:
RAILWAY
Westchester Train Station (AEP) 2.0 miles
BUS
Shortline Bus Station (AEQ) 5.0 miles
NEREG has gone GREEN:
All presentations from the conference are available for you to download listed by presenter name. Just click and print.
Adrienne Arkontaky - Life Planning
Adrienne Arkontaky - Transition Planning
Dana Casendino - Diet Therapy for epilepsy
Dr. Fertig - Is epilepsy inherited
Dr. Ghacibeh - Experimental Therapies for Epilepsy
Dr. Ghacibeh - Sleep and epilepsy
Dr. Politsky - Anti-seizure medications
Dr. Higgins - Neurogenetic basis ofautism and epilepsy
Dr. Olga Laban - Women and epilepsy
Dr. Trobliger - Strategies for Memory Problems in Epilepsy
Lindsey Veety, PT - Strategies for Living Safely with epilepsy
Shannon Brophy, RN, MSN, ANP-BC - Alternative treatments in epilepsy
Medication and Side Effects
Christos Lambrakis, MD
Epileptologist, Associate Director of the Northeast Regional Epilepsy Group
Memory and Attention Difficulties in Epilepsy: Testing and Treatment Options Lorna Myers, Ph.D.
Director of Clinical Neuropsychology of the Northeast Regional Epilepsy Group
Overview of the Epilepsy Foundation of Northeastern New York Jeannine S. Garab, Executive Director Sharon Gandarilla, Medicaid Service Coordinator
Tuesday, September 14, 2010
6pm - 9pm
Hotel Sierra
100 Westgate Business Center Drive
Fishkill, NY 12545
Registration is required
845-695-6885
abezuyen@epilepsygroup.com
The Epilepsy Foundation of Northeastern New York’s 2nd Annual Saratoga Stroll for Epilepsy will be held on Sunday, September 12th, 2010 at the Saratoga Spa State Park – Columbia Pavilion. Last year’s event attracted over 500 “strollers” and raised over $55,000!
Enjoy a “stroll” thru the beautiful Saratoga Spa State Park while helping a great cause! Help raise awareness and funds for the Epilepsy Foundation of Northeastern New York.
Check-in begins at 11am, Stroll starts at noon.
Pre-registration preferred; register early and receive a free Saratoga Stroll for Epilepsy t-shirt while supplies last!
Registration fee is $25 per person ($30 day of event); children 12 and under are FREE. A BBQ lunch, compliments of Holiday Inn Resort Lake George, will be served immediately following the walk. Other top sponsors to date include Hampton Inn and Suites Saratoga Springs Downtown, WVCR 88.3 The Saint, STAR 101.3, The Saratogian, and Capital Region Living Magazine. Sponsorship opportunities are still available.
Register and fundraise online at www.epilepsyfoundation.org/efneny. Top fundraisers will receive a trophy!
Session 1 August 9 - 13 Chatham ECLC School
Session 2 August 16 - 20 HoHoKus Public School
Session 3 August 23 - 27 Bloomfield Middle School
http://www.efnj.com/media/pdf/2010%20MMB%20Camp%20Brochure.pdf
Thursday August 12, 2010 from 10AM to 2PM
Epileptologist, Dr. Olga Grant Laban and Dawn Brace, epilepsy advocate will be at White Plains Hospital Center answering questions about epilepsy and seizures.
No registration required. This is part of the Wellness Through Prevention Program.
Address: 41 East Post Road, White Plains, NY.
Open to everyone including uninsured (a workshop on charity care will be offered by the organizers).
The White Plains Hospital Center-Northeast Regional Epilepsy Group will be sharing information on epilepsy
during the HISPANIC HERITAGE CELEBRATION in Valhalla, NY
July25, 2010
We will have bilingual staff at our booth providing information and education in Spanish speaking about: epilepsy types in children and adults, diagnosis, symptoms, treatment and care for people with epilepsy. The goal: to teach as many people of Hispanic heritage about epilepsy.
Where: Westchester County Parks Dept.
Ethnic food, music, dance, entertainment and arts and crafts!
Hours: Sunday Noon to 7 p.m.
Cost: Free
Location: Kensico Dam Plaza
Bronx River Parkway
Valhalla, NY 10595
Come by, meet our group and celebrate Hispanic Heritage!
For additional information:
(914) 864-PARK
The Renegades are rolling out the Astro Turf for NEREG
to spread an important message...
We are all “ALL STARS!”
Join us for an exciting evening of Baseball - Food - Fireworks & Much More!
When: July 3, 2010
Time: 7PM
Where: Hudson Valley Renegades
1500 Route 9d
Wappingers Falls, NY
http://www.hvrenegades.com
Sara-Elizabeth (www.itsnotwhoiam.com), now seizure-free, had her first seizure when she was 16 months old. Throughout her young life, Sara experienced both tonic clonic and partial complex uncontrollable seizures. Four years ago, Sara-Elizabeth, now 15-years-old, and a New Paltz High School student, turned her focus outward and organized this annual event as a way to create awareness of the disease.
This year, Epilepsy Life Links, a branch of the Northeast Regional Epilepsy Group, will have a “Sneakers for Seizures” team.
Walk With Us!
Date: Sunday, June 6, 2010
Place: The State University of New York at New Paltz
Time: 12:00 pm—2 pm
More Information: 845-695-6885
Register: abezuyen@epilepsygroup.com
Dr. Olgica Laban is the invited speaker at the Epilepsy Advocate Program
June 3, 2010 from 6-8PM at the Crowne Plaza Hotel, 66 Hale Avenue, White Plains, NY
To Register 1-866-865-7305 or www.epilepsyadvocate.com
Hear from an epilepsy advocate and then Dr. Laban will discuss the latest advances in epilepsy definition, diagnostic evaluation, classification of seizures, and treatment
Help raise awareness and funds for the Epilepsy Foundation of Northeastern New York!
Join Christy Molinaro, Walk Chairperson, and her family at the
1st ANNUAL STROLL FOR EPILEPSY DUTCHESS TO ULSTER COUNTY
SUNDAY, JUNE 6, 2010
WALKWAY OVER THE HUDSON BRIDGE
Check-in is at 11am on the Poughkeepsie side of the bridge; Stroll Begins at Noon
SPECIAL THANKS! TO THE FOLLOWING TOP SPONSORS:
EVENT SPONSOR: A. COLARUSSO AND SON
LUNCH SPONSOR: NORTHEAST REGIONAL EPILEPSY GROUP
Welcome to our Stroll for Epilepsy - Dutchess to Ulster County fundraising site! Interested in helping us raise funds? From this site, you can join the Northeast Regional Epilepsy Group-Epilepsy Life Links Team and begin raising money in support of the Epilepsy Foundation of Northeastern New York!
For patients and caretakers
Conference in spanish:
“Epilepsy: Cutting edge treatments, epilepsy in the school, epilepsy and the law, social effects”
When: Saturday, May 22, 2010, from 9AM a 12PM
Where: Marriott Glenpointe, 100 Frank W Burr Boulevard
PROGRAM
9:00-9:30 Registration and Breakfast
9:30-9:35 Program introduction Lorna Myers, Ph.D.
9:35-10:05 Marcelo Lancman, M.D. “Epilepsy: How is the diagnosis made and
what medications are used?”
10:05-10:30 Lorna Myers, Ph.D. Epilepsy: Myths and misconceptions. Epilepsy at work,
interpersonally, and being a mother with epilepsy
10:30-10:50 Evelyn Velis (public school teacher) Epilepsy in the school
10:50-11:15 The legal perspective: Immigration and health. Mariana Vazquez Garcia, attorney at law
11:15-11:45 Marcelo Lancman, M.D. Epilepsy Surgery
11:45-12:00 Surgical Patient testimonial
12:00 Time to ask questions to the speakers
FREE BREAKFAST PROVIDED
Sign up before May 12
Call Lucy Monday to Friday
9:00 AM to 5 PM
201-343-6676
Conferencia en español:
“Epilepsia: Cuáles son los tratamientos más avanzados, la epilepsia en la escuela, la ley y temas sociales”
Cuándo: Sábado, 22 de Mayo, 2010, de 9AM a 12PM
Dónde: Marriott Glenpointe, 100 Frank W Burr Boulevard
PROGRAMA
9:00-9:30 Registración y desayuno
9:30-9:35 Introducción del programa Lorna Myers, Ph.D.
9:35-10:05 Marcelo Lancman, M.D. “Epilepsia: Cómo se diagnostica y
qué medicamentos existen?”
10:05-10:30 Lorna Myers, Ph.D. La epilepsia: mal entendida por muchos. Epilepsia en el
trabajo,
las relaciones
con los demás, y las madres con epilepsia
10:30-10:50 Evelyn Velis (maestra de escuela pública) La escuela y la epilepsia
10:50-11:15 La perspective legal: Inmigración. Mariana Vazquez Garcia, abogada
11:15-11:45 Marcelo Lancman, M.D. Cirujía de epilepsia
11:45-12:00 Testimonio de una paciente que tuvo cirujía
12:00 Tiempo para hacerle sus preguntas a los presentadores.
INCLUYE DESAYUNO GRATIS
Anótese antes del 12 de Mayo.
Llame a Lucy de Lunes a Viernes
de 9:00 de la mañana a 5 de la tarde
201-343-6676
Did you know:
1. An estimated 1.2 million individuals with developmental disabilities live in New Jersey
2. Autism Spectrum Disorder occurs 1 in every 94 births in New Jersey
3. There are an estimated 1.06 million family caregivers in New Jersey alone
4. Epilepsy is equal in prevalence to cerebral palsy, multiple sclerosis and Parkinson's disease combined
In light of this extensive population, and the amazing services provided by The Family Resource Network Kim Politsky decided to sign up our Epilepsy Life Links-Northeast Regional Epilepsy Group Team. Help us reach our goal by contributing to the cause. Each donation makes a difference, and anything you can do to support us in this would be a terrific help.
When: Sunday, May 16, 2010: Walker Check-In 11AM-12PM, Walk Begins 12PM
Where: Seaside Park, New Jersey
To donate, you can make your contribution online at our walk website www.walkforabrightertomorrow.org. We would really appreciate it if you could tell anyone else whom might be interested in contributing or participating in the walk.
Proceeds from the walk will support the programs and services of The Family Resource Network and its four affiliates: Autism Family Services of NJ, Caregivers of NJ, the Epilepsy Foundation of NJ, and the Family Support Center of NJ. These groups provide services such as after-school care, information and referral,respite care and recreation and socialization opportunities for those with epilepsy, autism, developmental disabilities and chronic illness. For more information, visit www.walkforabrightertomorrow.org, www.familyresourcenetwork.org
Join Epilepsy Life Links and “Mighty Mike Simmel” for a Free BOUNCE OUT THE STIGMA EXPRESS event that has been specially designed for unique children and their special parents. You will discover Mike’s driving principal: “Limits do not define you, you define your limits.”
With an emphasis on having FUN, the kids will be on the court with Mike building confidence and honing motor skills, while parents will learn from the experts:
• Nutrition & Lifestyle Choices
• Special Needs Family Planning
• Sports & Epilepsy
• Child Psychology & Therapy
• Occupational Therapy and Wellness
Date: April 25, 2010
Place: Dominican College
470 Western Highway
Orangeburg, NY
Time: 11:30 am—3:00 pm
More Information: 201-725-7224 or 877-934-5447 x84
www.bounceoutthestigma.com
www.mightymikebasketball.com
Register Online: www.bounceoutthestigma.eventbrite.com
We have joined the Purple Day Campaign with the Anita Kaufman Foundation and
Epilepsy Association of Nova Scotia to increase awareness about epilepsy and to get people talking about epilepsy in an effort to dispel myths and inform those with seizures that they are not alone. Join the festivities that will include refreshments and give-aways once again at White Plains Hospital Center, East Post Road, White Plains, NY 10601, on Wednesday, March 24, 2010, between 10am and 3pm and become a part of this international movement. And learn about how you, too, can become involved every single day!
Presented by Jordan Jankus, Regional Coordinator Self-Advocacy Association of
New York State, Tuesday evening, March 25th, 7-8pm, St. Luke’s Cornwall Hospital –
Refreshments will be served. Reservations Required. Call 845-695-6885 or email
tconneely@epilepsygroup.com
Thursday, March 4, 2010, 10am-4pm, White Plains Hospital Center,
Davis Avenue at East Post Road, White Plains, NY 10601
Join Epilepsy Life Links staff to learn about
epilepsy, take home new resources and
current information, and have your individual
questions answered.
